ALS has changed my life

My name is Kelly & I am 32 years old.  My mother was diagnosed with ALS when I was 26.  I was living in Boston at the time and had no idea what ALS was.  I  vividly remember looking the disease up while I was at work….and crying at my computer.  If you Google ALS, it is not pretty!

My mom and I have always been the best of friends.  When I found out what ALS was….I was DEVASTATED!  I couldn’t believe that these significant changes would soon change my mom from the woman that I knew her to be.  I immediately moved home to help my family out.

I am now my mom’s primary caregiver, and taking care of her is my full time job.  About 3 years ago she was put on a ventilator (which only 3% of patients in MN choose to do).  We live a fun life & try to prove everyday that living on a vent can be done….and worth it!  It would be impossible without the love and care of my family, but just seeing that smile on my mom’s face…makes it all worth it :).

Mom and I at the ALS walk 2009

ALS has made my family what it is today.  We have never been closer, but it has also offered us many challenges.  My thoughts with starting this blog…are to send hope and inspiration to other families affected with ALS.  And to also show the small miracles that God has provided us through this experience.  Thank you for visiting!



Filed under October, Uncategorized

4 responses to “ALS has changed my life

  1. Jane May

    Julie, I love this new blog! I’m sure that Jenna told you that she was my dental hygienist recently. What a surprise! You have a wonderful family, and I know you already know that. I will look forward to visiting you soon. Love, Jane May

  2. Gretchen Norqual

    Hi Julie, Kelly and Family, You all are truly amazing and give inspiration to all of us.
    It’s so good to hear Julie is staying strong – will try to visit next week!

    Love to all, Gretchen

  3. Jenny Ann Pachkofsky

    I loved reading your blog. Please send my love to Julie! We live in AZ full time now, but I think about her often. When I get back to MN I am going to try to visit, and will call you Kelly. Your Mom is truly blessed with such a wonderful family, there is so much love for her. Big Hugs, Jenny Ann

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s