January was fun, but lets get on to February!

Looks like we are ending January with a bang around here.  Well, not really.  But it has been a fun weekend!  The days have been a little bit sunnier around here & not as snowy.  It sounds like the east coast has been getting hit this time instead of us.  Sorry to all you Bostonians & New Yorkers!  I can only imagine the places that they find to put that snow.

Friday we went to see The King’s Speech with our friend Catey.  It was excellent!  The theater was also packed with people & we just barely got handicap seating.  This hardly ever happens, so I was happy that we were able to grab those last seats.  It is funny thinking about all of the extra things you need to think about when having a wheelchair.  First you have to pray that there is handicap parking available, then you have to make sure you have all of the equipment that you need (vent related), you have to make sure all of the batteries are fully charged & last of all, you have to hope you don’t get stuck in the snow.  On a positive note, my mom makes it easy to bring chicken quesadillas into the theater for Catey & I.  We can just plop them in her lap & throw a blanket over them. Thanks mom! Lunch & a movie!

Yesterday it was back to the Excel Center for our 3rd Swarm Game.  We won again!  Now we are 3-1.  Go Swarm!  We had a nice little Jenna cheering section as well this time.  Thank you to all of our friends and family that have come out to see a game!  It seems as if we all have enjoyed getting to know the sport of Lacrosse.  They sure keep the energy level up there.  You feel like you have been to a rock concert when you leave there.  After we got back home & mom was back in bed, I enjoyed the rest of my evening off in my room.  I get a little jipped on my nights off when there is a game, but we will have a little break for a while now between games.  I will get a little more time off that way.  I am going to post some pics & video of J from the game.  Hopefully this isn’t getting too old to you peeps!

 

Dad & Jenna

Jenna & our Godmother Mary

Ross, Chris & Amy

 

 

Dad & Jenna's friend Sam!

Ross showing off his Swarm Pride

 

Today has been a usual Sunday for us.  We are hanging out & getting ready for the week ahead.  Jenna also stopped over for a surprise visit.  My mom has been having some edema in her arm, and I have been trying every trick in the book to help it.  I think that I will be chatting with her ALS doctor tomorrow.  We are thinking about looking into lymph therapy/massage.  We will also be heading back into the clinic for her 5th blood draw.  Cross your fingers!

Oh, and my relationship with my treadmill is going well!  I have worked out 4 days in a row now.  I have some nasty blisters on my baby toes…..but it feels good to break a sweat.  I will keep you updated!

 

Kate walking with Mama Jules at the ALS walk

 

I want to also give a shout out to one of my besties Kate!!  It is her 32nd birthday today!!!!  Happy birthday & Creeker Love!  Can’t wait celebrate with you next month.  (Kate lives in IA).  xoxo

Prayer for Julie: Pray for a solution to the edema in her arm.

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