Background Story about Julie

Julie was diagnosed with ALS (Amyotrophic Lateral Sclerosis) in September of 2004. Throughout the five and a half years, with the strength and continuous love of a large support system, Julie has maintained a courageous outlook and there is not a day that goes by where she doesn’t inspire everyone around her. Her positive spirit and true inner strength are infectious to all the lives she has touched. We know that Julie is extremely thankful for all the friendships, new and old, that have given her the ability to tackle this devastating disease. Our family would like to express our thanks and gratitude as we all work together to keep that sparkle in Julie’s eyes

5 responses to “Background Story about Julie

  1. Dear Julie,

    My name is Ann My sister is Nancy has ALS, She was diagnosed with ALS 14 months ago after falling down a flight of stairs and breaking her ankel, In less than 7 months Nancy became totally immobile her ALS progressed rapidly, most of the time now she is confined to bed she has been vent dependent for 4 months, she has lost her speech and cannot no longer swallow. She can only communicate with her eyes and i have been trying to teach her how to use a mouth stick so she can use the computer to communicate however, due to the lose of facial and mouth detoriation she is having trouble doing the mouth stick.

    We found your site Julie inspiring and uplifting we will keep you and your family in our prayers and continue to look at your site.

    Thank you

    Ann and Nancy

    • Thank you for writing Ann!

      I am sorry to hear about your sister Nancy. My mom broke her ankle falling as well before being diagnosed. I am sorry to hear that her progression has been so fast. All of those changes take a lot of time to adjust to. I am glad that you find our blog inspiring. That is exactly why we write it! Our thoughts and prayers are with you!!!!

      Kelly and Julie

  2. Kari

    I’m Doris niece and stumbled upon this blog. My aunt was diagnosed 5 mos ago with ALS and lost her battle the day before Thanksgiving after 5 mos. every time I drive by our house I wonder why anyone has this disease.i admire your strength and determination.

    • Dori just emailed me about your aunt’s passing the other day. I am so sorry for your loss! ALS is such a terrible disease. My mom has more determination than I could ever have. I pray that they will have a break-through some day soon. Our thoughts and prayers are with you and your family!

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